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What is NF?
Neurofibromatosis (NF1, NF2 and Schwannomatosis) are a set of distinct genetic disorders. Individuals with NF1 are prone to the development of tumors that grow on nerves anywhere on or in the body. NF1 can also affect other tissues, including the bones, skin, blood vessels, and eyes. In addition nearly 50% of all people with NF1 have learning disabilities.
Approximately 100,000 Americans have NF. NF1 affects 1 out of every 3000 births. Anyone/s next baby could be born with NF. It affects both sexes equally and has no particular racial, geographic or ethnic distribution.
NF is an extremely variable disorder. The severity of NF ranges from extremely mild cases in which the only signs of the disorder in adulthood may be multiple cafe-au-laits spots and a few dermal neurofibromas, to more severe cases in which one or more serious complications may develop. There is no way to predict who will have a mild case and who will develop serious complications.
The randomness at which this disorder strikes and changes at any age is it what worries us the most. NF is a progressive disorder. The rate of progression and specific complications is unpredictable. Individuals with NF1 usually experience a gradual increase in number of neurofibromas.
Children with NF1 are also prone to the development of brain tumors that may affect vision or growth.This is what motivates us to raise as much awareness and funds for research as possible. We hope that after educating yourself you will join us in our efforts. No donation is too small! Every dollar counts.
We appreciate any effort you make- donating, fundraising, and spreading the word about our web site and NF. Thank you!
Approximately 100,000 Americans have NF. NF1 affects 1 out of every 3000 births. Anyone/s next baby could be born with NF. It affects both sexes equally and has no particular racial, geographic or ethnic distribution.
NF is an extremely variable disorder. The severity of NF ranges from extremely mild cases in which the only signs of the disorder in adulthood may be multiple cafe-au-laits spots and a few dermal neurofibromas, to more severe cases in which one or more serious complications may develop. There is no way to predict who will have a mild case and who will develop serious complications.
The randomness at which this disorder strikes and changes at any age is it what worries us the most. NF is a progressive disorder. The rate of progression and specific complications is unpredictable. Individuals with NF1 usually experience a gradual increase in number of neurofibromas.
Children with NF1 are also prone to the development of brain tumors that may affect vision or growth.This is what motivates us to raise as much awareness and funds for research as possible. We hope that after educating yourself you will join us in our efforts. No donation is too small! Every dollar counts.
We appreciate any effort you make- donating, fundraising, and spreading the word about our web site and NF. Thank you!
