It pains me so that your little one is suffering from this disorder I to suffer from NF1. It has taken me many years to say that and now that I am involved with my local support group here in West Michigan, I have been a camp counselor for NF the past 5 years and in the process of starting a camp here in Michigan for children with NF, I feel and know what you are going through I see the effects of NF daily, stead the word is the best one can do.. Thank you

Thanks for all your efforts on behalf of people who have NF and their families. I was so grateful to find the national foundation, it got me in touch with the support group here in Iowa. I served as the state president for several years. Best wishes to your daughter. Would you please remember in your prayers for the family of 15 year old boy named Derrick Galle who died this week for complications of NF and cancer. Linda

What a great website. Our 5 year old Sam has NF1 and I am glad to see such wonderful smiling pictures of your family. We share a value for caring for our children and NF has made caring so easy. We'll be watching the Today show. Thanks for spreading the word.

HI- julia is beautiful. My dd also has nf1. We are dealing with quite a bit at this time but I think you all being on the today is great. I will keep you all in my prayers.

Hi Laura, We met at the CTF forum in D.C. My daughter is Dakota. I heard that you guys were going to be on the Today show on Thursday. Just wanted to say Hi and thanks for bringing awareness for NF! Keep in touch. http://www.caringbridge.org/visit/dakotaanderson