Hello, my name si suzanne and I also have nf1 as do two of my kids. I was born with nf and have delt with it all my life. I understand what she may go through later in life. Please check the inspire board to meet others just like us. www.inspire.com or you can e-mail at suzieq_4@hotmail.com just put juliabug in subject line so that i know it is you. I do wish that I could have caught your story on the today show. i will try to see if it is on their website. suzanne white covington.ga

Hi Julia and family! I saw your story on the Today Show and I have to say that you have inspired me with your story. Julia, we need more courageous and extremely brave people in this world just like you and I am so proud of you for staying strong and keeping that sweet and beautiful smile on your face! You keep smiling honey and I will continually pray for you and others out there affected by NF. We will find a cure and with the help of you and your family, our world has become a better place! God bless you all and my thoughts and prayers are with you! Feel free to contact me with any prayer requests or just a fun chat. Sincerely, Gretchen PS I am in the middle of making my own blog to help raise awareness for cures and inspirational people like you. I will send you the link when I have finished making it. :) Take care ladybug!

HELLO HOW ARE YOU MY NAME IS SHEILA AND MY DAUGHTERS NAME IS JADIN.SHE HAS NF1 SHE HAS LOTS OF CALS SPOTS EVERY WHERE BUT SHE DOESNT LET IT BOTHER HER SHE HAS A TUMOR ON HER BRAIN IT HAS BEEN THE SAME SINCE MY THEY FOUND IT.

WOW!! What a great little girl. You are a very lucky little ladybug, your parents look like they are very nice people and you seem to have a super big brother! Thanks for sharing your story and give your brother a "wet willy" evey chance you get, haha

Hi, I'm the father of another of the racing 4 research NF heros- Brenda. We are so glad you can get the word out on NF. Because Brenda looks "Normal" except for her leg Brace.... we have a hard time explaining the worry, doubts, fears and uncertain future that lay ahead. So glad we found the Children's Tumor Foundation. It sure has helped us feel we can do something. Fuel the Cure!