Thanks for sharing your story about NF. Both my daughter and son have NF and now my granddaughter also has NF. My granddaughter also has visual pathway tumor along with other forms of NF. We have come a long way since I was diagnosed with NF, and we continue to hope and pray that someday they will find a cure or help to slow the progress of the tumors. We have been a member of CTF since the early 80"s. We keep you in our prayers.

You are amazing and show us what we can do to help spread the word on NF! Thank you, Marianne, Izzy, James and Darren Mick

What a pretty little girl you are, and very brave. My daughter taryn also has NF.. So do I and my older son Tyler. Here is Taryns web site http://www.caringbridge.org/visit/taryngrodhaus

Hi Ladybug and Family, I saw you on TV and thought you did great. I also have NF as does my husband. I also have lots of MRIs and I agree they are not fun. I hope you are enjoying all the arts and crafts that you got, I love arts and crafts. I still color at my age!! Don't let NF get you down, it can be tough at times but don't let it bring you down. I am 36 years old and even though NF can bother me at times, I will push it away and enjoy all the great things in life. Stay strong Ladybug, and to your family thank-you for fighting the NF battle!! We need all the fighters we can get to beat this illness. Sincerly, Laurie

Great segment on the Today Show. Julia looked so cute. It's great that NF is getting national news. Thanks for all that you do. Take care.