Thank you for sharing your story, my daughter who turns 11 next month has segmental NF1, meaning she has several spots on her right side, however within the past month a few "angel kisses"(that is what we have named her spots) have made their appearance on her left side. Its nice to know that our family is not the only one out their, we continue to pray and hope for a cure, Thank you again for sharing and getting a word or two out there.

Thanks for spreading the word about NF and raising much needed money! My son has NF1 he turns 3 next month. He's happy health and delights everyone he meets. I look forward to a cure! Thank you again Ellie in Australia

I love you Julia! Love, Aunt Kristen

hi. good luck with your next appointment. i'm 10 and do girl scouts. i feel so sad 4 u ,but i'm hopeful everything will b okay. I was thinking maybe if my troop agrees we caan give u some of our cookie money next year. we get hundreds every year. mayb we could do a fun raiser 4 u 2. please email back. from your new freind, amanda

I just watched your story on the Today Show. How inspiring and a great way to get the word out on NF.Both my son and daughter have NF. My daughter has a learning disability and has had 2 spine surgeries to remove tumors. She also has other tumors they are watching.The uncertainty is so hard. Just wanted to say hello to "ladybug" and hope she does very well. My daughter has a caringbridge site if you would like to visit it. www.caringbridge.org/visit/brookebristow