Hi there Perfetti Family, Just wanted to stop in and say Hi. I hope you are all having a great day and enjoying the last bit of your summer. Take care.

I just came across your site while trying to learn exactly how I can make a difference in getting the word out about NF. My oldest daughter was diagnosed with an optic glioma more than a year ago and it has continued to grow and will require chemo. Our family struggles with this on a daily basis and its possible the my husband has NF one so each of my 5 children may be affected. Thank you for getting the word out.

My daughter was diagnosed with NF1 when she was 4 months old. She is now 2 (almost 3) and happy and healthy. We too are praying and hoping for a cure. Aloha.

Hi! I just watched the Today show clip. My 8 year old daughter was diagnosed with NF1 at 8 months old. She has many CAL spots, Lisch Nodules, a thickened Optic Nerve, and partial seizures. We know what you are going through. Thank you for sharing your story!

Thank you for sharing your story, my daughter who turns 11 next month has segmental NF1, meaning she has several spots on her right side, however within the past month a few "angel kisses"(that is what we have named her spots) have made their appearance on her left side. Its nice to know that our family is not the only one out their, we continue to pray and hope for a cure, Thank you again for sharing and getting a word or two out there.